Fighting autoimmune disease with an arsenal of healthful foods, exercise, natural remedies, and when all else fails, conventional medicine.
Well, yesterday was (potentially) my last day on prednisone. I say potentially because I am leaving the option open to take a mg or a half anytime this week if I feel like I need it. But, honestly, after what I’ve been through the past 3 months with the taper, I can’t imagine it getting […]
Read MoreI’m on day 2 of 1 mg prednisone. Getting so close to the end! Planning to drop to .5 mg next week by splitting the pills in half. No major issues so far this week, though it may still be too early to tell. I’ve been really tired (despite getting a full 8 hours of […]
Read MoreFeeling soooo much better today! Yayyyyyyy!!!!! Mouth still has lots of healing to do, and I have to be careful if someone makes me smile or laugh, because this lesion on my lip is no joke and has cracked painfully and bled on several occasions. I have an extremely funny husband and daughter, so while […]
Read MoreStill struggling, but seem to have hit a plateau. I don’t think this flare will get any worse. Now it’s just a matter of being patient and waiting it out. Today was day 3 on the couch. Mentally feeling a little stir-crazy, but physically, I just don’t want to move. I did get up at […]
Read MoreI felt so good last week, I really thought I’d turned a corner and the rest of the taper would be easy. Yeah- not so much. Dropped to 2 mg on Sunday, so today is day 3. I have a huge lesion on my tongue and several smaller ones throughout my mouth. Plus 3 medium […]
Read MoreI’m on day 6 of 4 mg on the prednisone taper. And this is the best I’ve felt since I began the taper 2 months ago. I’ve been feeling really good for a few days, but was afraid to talk about it too much- didn’t want to jinx it. I’ll be dropping to 2 mg […]
Read MoreAs I struggle to wean myself off of this medication (prednisone), I find the flippancy with which it’s often prescribed appalling. I know it saves lots of lives (possibly mine!) So I don’t ever want to diminish the life-saving value of pharmaceuticals. They really are amazingly effective in many situations. I just think they are […]
Read MoreI’ve been feeling pretty good the last couple of days and I am so grateful for that. Still on the tail end of this cold (congested and sore throat, but very mild) and oral lesions are mild. So I’ve been able to expand on what I’ve been eating and add in some crunchy leaves (that […]
Read MoreTapering off of prednisone SUCKS. I feel so unstable. Pretty much continuously on the verge of a serious flare (or actually having one, as evidenced by the 3 weeks I spent stuck at 10 mg). My original plan was to taper by 2 mg per week (I started at 20 mg). Everything was going relatively […]
Read MoreI’m feeling good. Mouth is still healing and throat is slightly sore, but I’m almost back to normal. Today is the first day I haven’t needed to take one of those crazy pain pills. I’m going to stay at 10 mg (of prednisone) for this week, just to give myself a break before I taper […]
Read MoreGetting better every day! 🙂 Baby girl and I managed church on our own this morning. Had a quick breakfast of grain-free granola before church. I made a batch before going to bed last night. It’s just a grainless variation on a homemade granola with oats that I’ve been making for a while. It’s got […]
Read MoreLesions and thrush continue to improve, though now the congestion and sore throat I’ve been fighting off seems to be digging in its nails. Coughed a lot during the night and am now losing my voice. Still not having the same throat issues as before (when it swells shut and affects swallowing and breathing) so […]
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