Fighting autoimmune disease with an arsenal of healthful foods, exercise, natural remedies, and when all else fails, conventional medicine.
Feeling soooo much better today! Yayyyyyyy!!!!! Mouth still has lots of healing to do, and I have to be careful if someone makes me smile or laugh, because this lesion on my lip is no joke and has cracked painfully and bled on several occasions. I have an extremely funny husband and daughter, so while […]
Read MoreStill struggling, but seem to have hit a plateau. I don’t think this flare will get any worse. Now it’s just a matter of being patient and waiting it out. Today was day 3 on the couch. Mentally feeling a little stir-crazy, but physically, I just don’t want to move. I did get up at […]
Read MoreI felt so good last week, I really thought I’d turned a corner and the rest of the taper would be easy. Yeah- not so much. Dropped to 2 mg on Sunday, so today is day 3. I have a huge lesion on my tongue and several smaller ones throughout my mouth. Plus 3 medium […]
Read MoreI’m on day 6 of 4 mg on the prednisone taper. And this is the best I’ve felt since I began the taper 2 months ago. I’ve been feeling really good for a few days, but was afraid to talk about it too much- didn’t want to jinx it. I’ll be dropping to 2 mg […]
Read MoreAs I struggle to wean myself off of this medication (prednisone), I find the flippancy with which it’s often prescribed appalling. I know it saves lots of lives (possibly mine!) So I don’t ever want to diminish the life-saving value of pharmaceuticals. They really are amazingly effective in many situations. I just think they are […]
Read MoreI’ve been feeling pretty good the last couple of days and I am so grateful for that. Still on the tail end of this cold (congested and sore throat, but very mild) and oral lesions are mild. So I’ve been able to expand on what I’ve been eating and add in some crunchy leaves (that […]
Read MoreTapering off of prednisone SUCKS. I feel so unstable. Pretty much continuously on the verge of a serious flare (or actually having one, as evidenced by the 3 weeks I spent stuck at 10 mg). My original plan was to taper by 2 mg per week (I started at 20 mg). Everything was going relatively […]
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